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     Fragile X Association of Washington State

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Upcoming Events and News

Please Join Us for the Annual Fragile X Family Meeting

Saturday, February 20, 2010

10:00 a.m.–3:00 p.m.

Seattle Children’s Hospital

Pre-Registration Required; Please RSVP by 2/12/10

click here for details

GRAND ROUNDS - FRIDAY, FEBRUARY 5, 2010

 GRAND ROUNDS, THE DIVISION OF CHILD AND ADOLESCENT PSYCHIATRY, Seattle Children’s Hospital
PRESENTS:

“Disability and Transition: Planning, Accommodations, and Technology”

click here for more details.

UW Study 

A University of Washington Study seeks individuals with Fragile X Syndrome between the ages of 10 and 45 years who have cognitive delays. Individuals would participate in a study looking at behavior and EEG measures of brain functioning. Please see our Research Projects page for more information and contact information.

 Seattle Children's Hospital

Seattle Children's is accepting appointments for Fragile X families.  Potential patients should call 206-987-2210 to schedule an appointment through Children's scheduling staff.   They should ask to schedule with Dr. Gwen Glew, in the Neurodevelopmental Clinic or, for adults (over 18), Dr. Lauren Plawner in Neurology.  

The Neurodevelopmental clinic is multidisciplinary and includes teams of nutritionists, physical and occupational therapists, and speech therapists.  The hospital also has audiologists, psychologists, psychiatrists (including Bryan King), and all other medical specialties for referral, including GI (gastrointestinal), Neurology (for seizure management), and Pulmonology/Sleep specialists. All patients seeking an appointment must have a referral from their primary provider.

Seattle Children's is also looking for participants for a study on Treatment for Irritability in Fragile X.  Please see the Research Projects page for more info. 

 

Please read the first edition of our bi-annual Fragile X Newsletter 

 

Elizabeth Griffin is a free-lance writer and speaker who lives in the Seattle area with her husband and two sons.  She is a board member of Fragile X Association of Washington State.

Click here for info on X Stories, which can be purchased on FRAXA or NFXF websites.

 

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