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Upcoming Events and News

1st Annual Seattle FXS Fragile X Syndrome Summer Conference
July 8, 2009 

Please view the announcement and the registration for information.

Annual Fragile X Summer Family Picnic

Saturday, August 22nd from 4pm to 8pm at the home of Jay and Elizabeth Griffin.  Please call or email us to RSVP and for directions.

Fragile X Appointments at Seattle Children's Hospital

Seattle Children's is accepting appointments for Fragile X families.  Potential patients should call 206-987-2210 to schedule an appointment through Children's scheduling staff.   They should ask to schedule with Dr. Gwen Glew, in the Neurodevelopmental Clinic or, for adults (over 18), Dr. Lauren Plawner in Neurology.  

The Neurodevelopmental clinic is multidisciplinary and includes teams of nutritionists, physical and occupational therapists, and speech therapists.  The hospital also has audiologists, psychologists, psychiatrists (including Bryan King), and all other medical specialties for referral, including GI (gastrointestinal), Neurology (for seizure management), and Pulmonology/Sleep specialists.

All patients seeking an appointment must have a referral from their primary provider. 

 

Please read the first edition of our bi-annual Fragile X Newsletter 

 

Next Fragile X Association of Washington State Board Meeting

To be announced 

 

Elizabeth Griffin is a free-lance writer and speaker who lives in the Seattle area with her husband and two sons.  She is a board member of Fragile X Association of Washington State.

Click here for info on X Stories, which can be purchased on FRAXA or NFXF websites.

 

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